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Showing posts from May, 2010

Hospital Appointment

I went to see the head ache clinic Nurse for the first time today. She was very nice, chatty & friendly. She was happy with what I have been doing so far e.g I don't drink tea or coffe, smoke, drink alcohol I'm trying ti eat healthy & I only really drink water. The only thing I need to remember is to keep a little diary & drink more water than I am. I am back again end September to see how I am getting on. I am now taking 50mg of Amitriptyline & she said she may put me up to 75mg depending how I am in Sept. Its a month by month thing she said. Ironically I have had the best day I have had in weeks (other than the constant pains!!) I have been putting links all over facebook & emailed everyone to try & help with awareness. Tomorrow I am going to my friends house for a massage appointment which I hope will help with my neck & back. I will also hear & get all the info re my fundraising raffle...so fingers crossed I should be able to order some tickets …

Happy ME/CFS awareness day!!!!

I have copy & pasted this post from Laurel's blog because I think it is well presented & perfect for people to learn more.

Today is International ME/CFS Awareness Day. Unless you have or know someone with ME/CFS, you probably wouldn't know that. And even if you did know, you probably won't read about it in any newspaper, nor hear about it on any media outlet. Like many ME/CFS patients themselves, this day tends to go by unmentioned, unnoticed, unheard.

So, in an effort to do my small part in raising awareness about this illness, here are just a few basic facts about ME/CFS:

1. Chronic Fatigue Syndrome (CFS) is a serious disease with a ridiculous name. CFS is also known as Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (M.E). It is often abbreviated ME/CFS.

2. ME/CFS is a complex, multi-systemic illness, effecting the immune, endocrine, cardiovascular, autonomic, and central nervous systems. It is classified by the W…

Lets Blog,......dooby , dooby ,,,,lets blog!!

Actually it should be lets get warm. I am totally frozen this morning, feel rubbish & on my period (which was a week late again)
Today I am going to give you 10 symptoms I have other than "feeling tired" which is the only one anyone ever knows! Severe pains in my neck which can cause me to pass out, just from holding my arms up at shoulder height.Bruises & not always small ones ALL over my legs. I look like I've been beaten up!Pains - in my elbows, knees, ankles, down my legs, fingers, wrists, back - all very randomly or if I stay in same position too long or walk too far etc... & we're not talking discomfort I'm talking PAINS!Loss of voice &/or sore throatBrain - foggy head, lack of concentration. Total memory erased moments. Can't even form a sentence or think what my name is....& I'm not joking...it is VERY scary.Not being able to move when I want to eg - when you think move your leg you dont actually have to think "move my leg&q…

Blogging for CFS/ME week....

.....well over the weekend I thought I had food poisoning & was quite ill with my belly. Poor hubby had to hold me up on the toilet while I was in & out of consciousness!! I've now found out my mum has been badly too, so don't think mine was food poisoning.
Not been sleeping very well again. Hubby has been full of cold & has taken snoring to a hole new level!! Last night I tried my new dose of Amitriptyline, but today I just want to sleep.  I found it really difficult to get out of bed this morning. I just couldn't wake up. When I was pretty much awake & then couldn't get my body to move. Its like I think "Move" but my body isn't getting the messages from my brain.
My head is foggy & I don't quite have a headache but my head feels crap & all I want to do is go back to sleep! Crappy day :-(

Blogging for CFS/ME ...awareness in May

Well its May1st & the beginning of blogging for CFS/ME awareness.
Today I have received some prizes for my raffle from channel FIVE to raise money & awareness. I am just waiting to hear from AFME to make sure everything is ok for me to sort the tickets out. I can't wait!
I've also received my first stock order today for when I relaunch my online shop.
Onto the ME!
Slept better last night because hubby slept on the sofa because he has man flu & would be snoring all night!!
Had crap dreams most of the nigth about being in pain & my legs not working. When I woke up my legs were hurting & numb....probably why I was dreaming the same thing!
Made a couple of new friends through Facebook CFS/ME pages. I would recommend joining them as I now feel much less alone having people talking about their ME everyday.
Its that time of day for me when I get really tired & need a power 2 hour (sleep) Hubby is snoozing now on sofa with the occasional snorty snore!!
Got ton …